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Things don’t just happen…

It has been so crazy around here… crazy and busy and I’ve been so tired, so I apologize for not blogging. Kinda crazy too because Ava hasn’t been doing that well.  Too be honest when I saw her...

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His perfect timing

I have some great news for everyone, but I will keep you waiting and first tell you that little miss Ava had another great day.   Our plan was to go to church today, so when I accidentally woke up...

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Quick jot…

Today was an OK day for Ava.  I got to the hospital early this morning because I didn’t want to miss any of her awake time, and I was rewarded by a happy smily girl, who gave me a nice snuggle.   I...

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It’s about Him

So poor Ava is definitely fluid overloaded again.  We had such a stretch of good days that I think we all got complacent, and then WHAM…. she retained way too much fluid.  So they started giving her...

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Hard to hear…

This morning when rounds came they were still being led by doctor who the head of the heart transplant program, and she knows her stuff.   She was the one who decided earlier this week that Ava should...

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Friends and Birdys

This week is over!   And it’s been a good week – but a busy week and I’m glad it’s the weekend.     The kids have a full week of school under their belt and they all did pretty well.   Sophia loved...

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A trip to Toronto

It’s Friday already!  And I really thought that I would post this post sooner… but apparently that didn’t happen.   So it was already 5 days ago when I took a train to Toronto to visit my good friend...

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512 Nights…

Last Saturday I got this text from my friend Tanya, Aleeda’s mom….  ”512 nights at Ronald MacDonald and now we are all home!”    It just blew me away that it had been that long that they had lived in...

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Nailed it

I am very aware of all my failures in life, they are too numerous to count.  But on the bright side some of my failures make me laugh and hence should be shared.  Take this for example, Sarah’s...

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Where my heart is today…

Today my heart is with the Syme family as they mourn the loss of their sweet daughter Evynn… A four year survivor of hypo-plastic left heart,  and a receiver of a heart transplant that so sadly didn’t...

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