Clik here to view.
Today’s news…
So today Ava had her echocardiogram at 9:00 am, and at 12:00 pm I was told by our Nurse Practioner that Ava’s echo did not show any improvement in function. Her echo was done by a tech, but finished...
View ArticleClik here to view.
Happy Birthday Sophia!
Sophia turns 4 today, Happy birthday Sophia!!! She’s growing up so fast, our little sweetie pie. Our sweetie pie with an iron core. She’s sweet but tough and it’s a good thing because it’s meant...
View ArticleClik here to view.
Trying to mend
Well it’s seems it’s been an uphill battle for Ava to recover from everything she’s gone through. Yesterday (Sunday) I was concerned about her in the morning, because she was breathing shallow and...
View ArticleClik here to view.
Six months old!
Wow, Ava was 6 months old yesterday! It’s hard to believe that we’ve had her for half a year already… it actually seems like longer, perhaps because it’s been so busy. And she is still on the mend....
View ArticleClik here to view.
One month
As of tomorrow, June 10th, I will have been in Toronto with Ava for a month, I can hardly believe it. I just wonder how many more months we will be here… I wonder. I realized today that Ava has...
View ArticleClik here to view.
Listed!
So yesterday around 4:30 pm, Ava was officially put on the waiting list for a new heart, praise God!! When you are waiting for an organ donation in Ontario you are listed with Trillium, the gift of...
View ArticleClik here to view.
Day by day
There has been so much going on these past few days. Ever since we’ve listed Ava it feels like a whirl-wind and it’s been so busy and I haven’t been getting much rest or down-time and I think I’m...
View ArticleClik here to view.
Up and Down
If this journey starts to feel like a teeter-totter ride with all its ups and downs, I do apologize and honestly can say that I wish it was different! Ava had that great day on Friday, but then...
View ArticleClik here to view.
Thank you!
Once again, thank-you to everyone for your prayers and support right now. And we also wanted to shout out a huge thanks to Jason’s sister Lija’s co-workers at the London Courthouse… they had a...
View ArticleClik here to view.
Still asking!
We had a good day today – and that was good because Jason left to go home for a few days last night and his mom came up in his place which I’m so grateful for. It’s nice to have help and there really...
View ArticleClik here to view.
July 1st
It’s July the 1st and so I will say Happy Canada Day! We live in a great country, and as you can imagine I am very grateful for our Country today… a country where we get amazing health-care without...
View ArticleClik here to view.
Congestive Heart Failure
Well thankfully this morning Ava is feeling much better. They finally managed to get some fluid off of her and so her fluid balance is less positive and her liver is back down to a normal size....
View ArticleClik here to view.
I hope He will…
Ava is seven months old today – where is the time going? And she was feeling a bit better which was nice to see. She got a blood transfusion yesterday so that helped her hemoglobin levels and...
View ArticleClik here to view.
A Little Stress Relief
We got the best kind of stress relief this weekend, we went home! After my “episode’ on Friday, or as my dear darling husband likes to call it, my cry for help (oh haha, he’s so funny) I was more...
View ArticleClik here to view.
Encouraged
Well this morning started out well as I was happy to be back at the hospital with Ava and she was happy to see me and we had a really nice snuggle… But then rounds came by. And the doctors told me...
View ArticleClik here to view.
A Verse and a Video
Ava had an OK day today, I think her teeth were bugging her and that made her a little cranky, and that tired her out so she slept most of the day. But just before dinner she woke up and was happy...
View ArticleClik here to view.
Another bump in the road
Well three days ago I took that video of Ava and she was quite happy – and then yesterday the little monkey went downhill again. When I went to see her yesterday morning her heart rate and...
View ArticleClik here to view.
We Believe
So this morning Ava got her picc line re-wired and now has a double lumen picc! We are all quite pleased. And I realized today that Ava is pretty smart. This morning a member of the transport...
View ArticleClik here to view.
My theory
These past few days have been crazy again! And it was good to be home for a bit, but I won’t lie, being home is also stressful. Stressful in the way that when I’m there I just want to stay, but then...
View ArticleClik here to view.
Things don’t just happen…
It has been so crazy around here… crazy and busy and I’ve been so tired, so I apologize for not blogging. Kinda crazy too because Ava hasn’t been doing that well. Too be honest when I saw her...
View Article